Disabled Parenting, Growing up undiagnosed, scouting

Keeping Autistic Kids Off the Internet Does Not Protect Them, Teaching Internet Safety Does

My Experience with Being Banned from the Internet As a Child The internet first started to grow when I was in high school. My mother had a friend from Shul who worked for the local cable company and we had high speed internet early. It was great except I was the only one not allowed… Continue reading Keeping Autistic Kids Off the Internet Does Not Protect Them, Teaching Internet Safety Does

Disability Hacks, Disabled Parenting

Americans: Did you know Medicaid Covers Nutrition Shakes, Incontience Supplies, and weighted vests?

Medicaid covers more than what they tell parents and patients.  I made this discovery a few years ago. N is on pedicure for weight gain. J is on pedicure because sometimes she cannot eat due to stomach issues.  Pediasure We were worried about N not gaining enough weight and because of how tiny he was.… Continue reading Americans: Did you know Medicaid Covers Nutrition Shakes, Incontience Supplies, and weighted vests?

ableism, Disabled Parenting, Discrimination

Always Presume Competence, The Consequences Can Be Dangerous

It is extremely important to presume competence in everyone. It does not matter if the person is disabled or not. The consequences can be dangerous.  Yesterday morning, N jumped off his top bunk and landed on the floor. My husband tried catching him but was unsuccessful. We kept him home from school that day and… Continue reading Always Presume Competence, The Consequences Can Be Dangerous

comorbidities, Disabled Parenting, PCOS

The Effects of Eugenics is Being Felt in Doctors Offices, Even Now

Many think eugenics is a thing of the past. It was not left to die when the Nazi party fell or when the autism DNA project had clapback. It is especially evident when the genetic test for Down's syndrome was made widely available. Now there is a test to see if your fetus has Down's… Continue reading The Effects of Eugenics is Being Felt in Doctors Offices, Even Now

comorbidities, Disabled Parenting, EDS

Transitioning to Being An Ambulatory Wheelchair User

So about a year ago, I was diagnosed with EDS. It took a long time to get a diagnosis because of the myth that only people who are not overweight can have EDS. I am overweight because I have PCOS. EDS is a connective tissue disorder that causes hyper mobility, stretchy skin, unexplained injuries (my… Continue reading Transitioning to Being An Ambulatory Wheelchair User