Having an uncommonly diagnosed condition can often lead to seeing providers that have not heard of your condition that impacts your life. This has happened over and over again. This happens so often, when you see a provider that knows a lot about the condition, you are genuinely surprised. In October, I saw my primary.… Continue reading When An EDSer Sees an Ehlers Danlos Informed Specialist
https://podcasters.spotify.com/pod/show/fierceautie/episodes/The-Intersection-Between-Autism--Ehlers-Danlos-Syndrome-and-Polycystic-Ovary-Syndrome-e2cttmj Both Ehlers Danlos syndrome and polycystic ovarian syndrome are both comorbidities with autism. What about the intersection of different comorbidities? There is plenty of research about what the likelihood in certain situations and certain conditions to have an autistic child but not enough on the intersection of different conditions and autism, especially when it… Continue reading Intersection of Autism, Ehlers Danlos Syndrome and Polycystic Ovarian Syndrome
{img decription: brown background with white text that says "Fight ableism, racism, queerphobia, antisemitism, Islamophobia, and all bad isms and phobias" There are power fists rising up from the bottom in all different races and my logo in the center} This is long overdue. Most people already know, my family and I made the long… Continue reading Service Dogs are Not Licensed in the United States. A Story and What the Law Really Says
I bought Kayce Pandacorn from Goodwill a few years ago. He was well loved and the stuffing was worn but I love him. Boop was in the facility and she used to call me panda all the time. It was appropriate and $3 was an amazing price. I get most of my Squish from there… Continue reading Disability Hacks: Giving your Squishmallows or other Plushies New Life By Adding More Stuffing
Internalized ableism can manifest in many ways. Its not just some ideas about autism, it could be about any physical, mental or neurological condition as well. For those who are new here, I have Ehlers Danlos Syndrome. It effects my mobility when I am on my feet for a long time at one time. Last… Continue reading Stop Your Internalized Ableism, Your Kids Don’t Care About Your Mobility Aids
Aviva Seigler 